![]() ![]() They don’t know that I spend most days at home without going out at all, saving up my miniscule stores of energy for the things I really want (or have) to do. They don’t know that I have to spend hours afterward resting after any trip, even just to my local coffee shop. ![]() They’ll see me sitting in a café or chatting with other parents at my son’s school, and there is nothing in my appearance to indicate that I have a chronic illness. is an “invisible illness,” one that isn’t obvious at first sight. Today, though, I wanted to talk about why I talk about it. ![]() I’ve talked elsewhere about what it’s really like to have M.E. “Fatigue” is really not the word for it! The name “Chronic Fatigue Syndrome” just asks to be laughed at-because after all, haven’t we all been tired from time to time? Well, no. ![]() (CFS is still the medical name in the United States in the UK, where I live now, it’s referred to as Myalgic Encephalomyalitis, or M.E., which is a lot more accurate as a label. I even read particularly scathing, sarcastic bits out loud to my parents.Ībout ten years later, I was diagnosed with M.E./CFS. Those silly rich people imagining themselves sick! The column referred to the syndrome as “yuppie flu,” and oh, it was hilarious. I was a teenager when I saw it being mocked in a snarky Sunday column in the New York Times. I remember the first time I ever heard of Chronic Fatigue Syndrome. ![]()
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